Support and Information

Every person who has Down’s syndrome is unique, and no one can predict how your baby will develop, however people with Down’s syndrome can make the most of their abilities and live happy fulfilling lives.

Babies who have Down’s syndrome have the same care and support needs and follow the same developmental path as all babies and will achieve milestones at differing times, just like all children do. You don’t need to be doing anything different or special at this stage – just lots of love and cuddles and spend time playing and enjoying time with your baby through talking, singing, cuddling, and massage, getting to know them and bonding with them.

We hope you find the booklets in your new parent pack and the information sections below useful. Our Family Support Team are also here for any additional support or information you may need. We have local officers based across Scotland who are happy to answer any questions or concerns you might have, they can tell you more about the services and support we offer and  also put you in touch with other parents of babies and children with Down’s syndrome if you would find this useful too.

You can get in touch with the team either by phone, email or video chat. Our helpline is open from 8am – 8pm Monday to Thursday (8am – 5pm Friday), on 0300 030 2121 or by email at You can find out more about our Family Support Service here.

We have local branches around Scotland too, ran by parent members, who run groups, activities and events for families of children with Down’s syndrome where you can meet and talk, click here to find out more about your local branch.

We also have weekly online groups for parents and babies. Our Wee Song and Sign Circle is a fun 30-minute online session singing and signing along to nursery rhymes and action songs and we have a Makaton sign sharing for babies group each week where you can join us online with other parents and babies to learn some key signs for supporting your babies early communication, find out more here.

In this short video clip one of our members Moira shares with us her experience when her son was born, what life is like now and how those worries disappeared.