Our view

OUR VIEW - imageThe Board of Trustees have carefully explored the policy background, issues and challenges around pre-natal testing.

Down’s Syndrome Scotland continues to believe that people with Down’s syndrome can and do lead full and rewarding lives.

Down’s Syndrome Scotland acknowledges that the offer of pre-natal screening and testing for Down’s syndrome is a routine part of antenatal care offered in Scotland. We respect parents’ rights to making choices about antenatal tests and their outcomes.

However at the time of screening/testing, easily understood and up-to-date information SHOULD ALWAYS be provided in a balanced way by well trained professionals. This should include:

  • The accuracy of screening/test results and associated risks of further screening/tests;
  • The life prospects of people with Down’s syndrome;
  • The impact on families (challenges and joys);
  • The support available both from Down’s Syndrome Scotland and in the community;
  • The offer of informed, broad and non-directive counselling from a suitable specialist.

Our purpose is to ensure that the prenatal screening/testing process informs all potential parents of the challenges and joys of having a child with Down’s syndrome.  We offer to support expectant parents who contact the organisation during this time, through our family support service.

In providing such information, Down’s Syndrome Scotland maintains neutrality as a recognised source of impartial advice and supports the people involved whatever their personal decision.