COVID-19 & Down’s Syndrome and other Essential Information

The pandemic has turned all our lives upside down and created unprecedented challenges for people who have Down’s syndrome and their families and carers.


We have collected some useful resources and links for you about what support is available and answering some frequently asked questions.


Our Family Support team are here to answer your questions and talk about any concerns you may have, give us a call our helpline 0300 030 2121 or email



General Information for Scotland 

  • NHS Scotland information about Coronavirus:
    • This includes information about symptoms and how to get a test.
  • Scottish Government’s Coronavirus information:
  • Scottish Government’s Extra Protection Level Advice for people at higher risk: view the PDF here
  • If you have been asked to self-isolate and need additional support to do so effectively you can contact the National Assistance Helpline on 0800 111 4000 or contact via text phone on 0800 111 4114. It is open Monday to Friday, from 9am to 5pm. This helpline is dedicated to helping those who cannot leave their home and who cannot get the help they need otherwise. Where we can, most of us should speak to family, friends, and neighbours to help us deal with a period of self-isolation.

Adults with Down’s Syndrome and those who provide support 

  • Shielding Advice

Since November 2020 people with Down’s syndrome aged 16+ have been included on the list of people at the highest clinical risk from the COVID-19 virus, this is sometimes referred to as the ‘shielding list’.
All adults with Down’s syndrome aged 18+ living in Scotland were sent a letter from Scotland’s Chief Medical Officer about the additional advice and support they will be offered and explaining that they should take extra care now because they are at the highest risk of severe ill-health should they catch the virus.

At the moment there is no requirement for anyone with Down’s Syndrome to shield. Be beware that this advice might change in the future. We will update the information provided here if that happens.

  • Easy read information
    • You can find easy read information about Coronavirus, government guidance and social distancing here.
    • The Scottish Commission for Learning Disability (SCLD) have been working with the Scottish Government to produce some guidance for people with learning disabilities on the Coronavirus outbreak and how people can protect themselves – you can view their resources here.
  • Guidance for unpaid carers, personal assistants, social care providers and adult day services providers – the Scottish Government have guidance for those who provide care and support under the Health workers, carers and social work section here.

For parents of children with Down’s syndrome 

  • DSA’s Journal published articles about Preventing infection in Children with Down’s syndrome and Recognising serious illness in children with Down’s syndrome you can find both of these articles here.

Information for Carers on the COVID-19 Vaccine 

  • National Carers Organisation have produced a sheet of frequently asked questions outlining the current position around unpaid and family carers receiving the COVID-19 vaccine – you can access this here.

If you have any difficulty in getting the support or information that you need our Family Support team are here to help.  Call our helpline 0300 030 2121 or email