SCLD COVID-19 Learning Disability Survey

Date: 21st October 2020

SCLD is working with a research team at the University of Glasgow led by Professor Andrew Jahoda.  This is part of a UK wide piece of research being conducted in collaboration with a number of academic institutions and experts including Professor Chris Hatton at Manchester Metropolitan.

The project aims to understand the wellbeing, health and social effects of the COVID-19 pandemic on those with learning disabilities, identify factors associated with better outcomes, and identify urgent issues emerging over time.

They are looking to interview 200 people with mild/moderate learning disabilities (aged 16+) and 100 family carers or paid care staff/support workers to complete online surveys about adults with severe/profound learning disabilities.

What does involvement consist of?

Interviews will be undertaken with the same cohort of people 3 times across the project, which will last 12 months.  Participants will respond to survey questions asked by a researcher in one to one conversation by telephone/Whatsapp/Skype. Participants can have a support person/relative etc. with them during the interview to support them and assist with the use of technology etc. They will also be given the option to complete the survey themselves online.

Family carers or paid care staff/support workers of adults with severe/profound learning disabilities will be asked to complete an online survey about the person they care for.

The three phases of data collection are planned for – November 2020, February 2021, May 2021.

What will the survey questions focus on?

Questions topics will include wellbeing, health, the impact of COVID-19 on wellbeing, lifestyle and finances, living circumstances, and changes in support received.


If you are interested in taking part please email, we will keep up updated on what the next step will be.