Rest-Ed Study

Date: 13th September 2019

Children with Down’s syndrome (Ds) experience a higher incidence of sleep problems than their typically-developing peers. Untreated sleep problems in children (with and without Ds) can lead to sleepiness, behavioural and emotional problems, cognitive impairment, reduced quality of life and reduced academic achievement.

A study by Dr Rebecca Stores at the University of Portsmouth a number of years ago demonstrated that group education of parents using a video and booklet can offer some benefit regarding behavioural sleep problems in children with Ds. A new study is currently underway in Scotland, by researchers and sleep specialists from the Royal Hospital for Sick Children in Edinburgh, to evaluate the effectiveness of an updated version of the education package, delivered in a small group setting, on the sleep and quality of life of young children with Ds and their parents/carers. Should the revised package prove effective, it is hoped that it will be made available to families across the country, both with and without Ds.

REST-Ed, funded by a grant from Edinburgh Children’s Hospital Charity, are looking to recruit young children (aged 6m to 5yr) with Ds living in Scotland and their parents/carers. The study will be based at the Royal Hospital for Sick Children, Edinburgh, by  Dr Lizzie Hill, Dr Jessica Street and Dr Patricia Jackson.

If you would like to participate in this study, please email the REST-Ed team on lothian.REST-EdStudy@nhs.net, or speak to the lead investigator, Dr Lizzie Hill on 0131 242 9379.