Information for Expectant Parents

Whether you have had news that your baby may havDown’s syndrome, or you already know that your baby has Down’s syndrome, we’re here for you.  

We understand that you may be experiencing a wide range of emotions, from feeling joy and excitement about having a new baby, to feelings of uncertainty, shock and disappointment, or fear and anxiety about what the future will hold for your baby and your family, it might feel like there is just too much information to take in. 

We’re here for you 

We can support you through these early days and will continue to support you throughout your pregnancy, should you wish.  

When you are ready, our Support Team are here to answer any questions you might have or talk through your concerns or worries. You can get in touch by emailing or call on 0300 030 2121. 

We can also put you in touch with other parents who can share their experiences with you if you would find that useful too. 


In the meantime, we have a booklet called Little Booklet About Babieswhich contains inspirational stories about babies with Down’s syndrome written for parents by parents.

Getting to know a baby with Down’s syndrome was specifically written for new parents and their family and friends to help you and those close to you understand more about Down’s syndrome.

We know there is such a lot to take in right now, but the most important thing to remember is that Down’s syndrome is only a small part of who your baby will be. Just like the rest of us, everyone who has Down’s syndrome is a unique individual, full of potential who can enjoy long, healthy, happy and fulfilling lives…they just happen to have an extra chromosome.